ME/CFS HealthWatch

01-30-2008

ProHealth's ME/CFS HealthWatch Highlights: · Q&A with Dr. Klimas · Dr. Klimas - Portrait of a scientist · ME/CFS gender link clue

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FOUNDER'S CORNER January 30, 2008 Name Change Website Launched! Campaign for a Fair Name announced the launch this week of its website, aFairName.org. The campaign is the grassroots patient and physician effort to change 'chronic fatigue syndrome' to the acronym ME/CFS. 'ME' is considered by most physicians and patients to be historically and diagnostically correct, and it has been used worldwide to describe the disease for close to 50 years. The Campaign's website presents the history of the name change effort, along with the rationale for the selection of 'ME/CFS'. The website also offers additional information and resources, including: A petition to support the name change Campaign activities and our cause Message Board exchanges Name Change Advisory Board members Fair Name Implementation Committee (FNIC) members The upcoming name change ratification Vote and how you can help make a difference. This effort could die without your support and participation. I am calling on you, your friends and family members, and healthcare providers, to help us make the name change a reality. Sign the name change petition, join the conversation on the Message Board, help us spread the word. The demeaning label 'chronic fatigue syndrome' is about to disappear forever. But now it is up to you. Please do your part. Yours with passionate determination, Rich Carson Patient Advocate FEATURED ARTICLE Q&A with Dr. Nancy Klimas, MD - From the January 11 Live Chat Event Are ME/CFS and Fibromyalgia one and the same? What are the most promising new studies, treatments, genetic/subgrouping findings, antiviral therapies, tests, drugs for sleep and fatigue, diagnostic keys? Chat participants asked all this & much more - and Dr. Klimas answered. ARTICLES, EVENTS, SOLUTIONS More new articles Dr. Nancy Klimas - Portrait of a Scientist Driving Change & Hope "If I could clone myself out 10 times and do nothing but see patients, I would still have a wait list," says Dr. Klimas. But as director of two ME/CFS/FM research centers and president of the International Association for ME/CFS, she's determined to make things change. THIS FRIDAY, FEB 1: Join the Live Q&A with Dr. Charles Lapp, MD, in the ImmuneSupport.com Chat Room - 3-4 pm Pacific Time, 6-7 Eastern In the 1980's, Drs. Lapp, Cheney, and Bell brought CFS to national attention and formed a pioneering treatment & research team. Today, Dr. Lapp's Hunter-Hopkins Center remains one of a few in the world focused on ME/CFS/FM evaluation and care. RESEARCH ABSTRACTS More new abstracts Cortisol study likely step to understanding ME/CFS risk in women This CDC study of morning increases in the stress-response hormone cortisol (a key player in daily sleep-wake cycle regulation and considered a marker of HPA axis dysregulation) offers a clue to the increased risk of ME/CFS in women. Jason reports 4 ME/CFS subtypes, proposes 'empirical' case definition Highlighting the need for a more evidence-based (empirical) case definition for diagnosis of ME/CFS, Dr. Leonard Jason, PhD, reports on a study that clustered patients into four diagnostic subtypes. LETTERS FROM OUR READERS Comments & Suggestions · ME/CFS & FM not same · Lyrica helped ME/CFS · Separating ME/CFS & FM · Memory problems improved · Change that name Daily Living Tips · Pacing is key · Let guilt go · Shopping trips · The gift of time · Housework tips Questions? Comments? Please share your thoughts with us! Send us a letter WEEKLY INSPIRATION "She was so sweet that, after 15 minutes, I wanted to marry her. And after half an hour, I completely gave up the idea of snatching her purse." - Woody Allen Doing the Best We Can Many of us say to ourselves, "I know I can do better if only I tried harder." This could be true. But all we're asked to do is the best we can. We must realize that each day with chronic pain, doing the best we can changes. Yesterday we may have been able to work a full day and go out for the evening. Today the best we would do was go to work and survive the day. We need not compare ourselves with others. From Living With Chronic Pain One Day At A Time by Mark Allen Zabawa These statements have not been evaluated by the Food and Drug Administration. These products are not intended to diagnose, treat, cure, or prevent any disease.

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