Fm HealthWatch

02-06-2008

ProHealth's FM HealthWatch   Highlights: · Q&A with Dr. Lapp · Q&A with Dr. Klimas · FM a Central Sensitivity Syndrome

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FOUNDER'S CORNER February 6, 2008    Name Change Website Launched We Need Your Help! As some of you may know I have been working on a special project which is very important to me and hundreds of thousands of patients throughout the United States, called the Campaign for a Fair Name. This campaign is a grassroots patient and physician effort to replace use of the name 'chronic fatigue syndrome' with the acronym ME/CFS. And whether you're an ME/CFS patient or a supporter, your help right now is crucial to make this demeaning name and what it implies disappear forever. It's simple: Visit the Campaign website afairname.org to read the history and the rationale for using ME/CFS to replace the name 'chronic fatigue syndrome ' - as so eloquently expressed by leaders of the patient and medical community (our advocates). Sign the petition indicating your support of the resolution to change the name 'chronic fatigue syndrome' to the acronym ME/CFS. We need your support to make this happen - please forward the petition to friends and family members. Begin using the acronym ME/CFS - or simply ME, if you prefer, as I do - everywhere. Spread the word about the May patient vote to ratify the name ME/CFS. Vote - If you are a patient please vote in May. You can even sign up for a reminder email that will be sent to you just prior to the vote. Only your support and participation can make this name change a reality. So please help. Sincerely, Rich Carson Patient Advocate   FEATURED ARTICLE      Q&A with FM/ME/CFS doctor Charles Lapp, MD - From the Feb 1 Live Chat Subjects ranged from CBT to drug therapies, IV treatments, office visit guidelines for doctors, antivirals, and vitamins D and B12. There were so many questions, Dr. Lapp proposed a return engagement to cover more.   ARTICLES, EVENTS, SOLUTIONS More new articles    Q&A with Dr. Nancy Klimas, MD (held January 11) Are ME/CFS and Fibromyalgia one & the same? What are the most promising new studies, treatments, genetic findings, antiviral therapies, tests, drugs for sleep and fatigue, diagnostic keys? Chat participants asked - and Dr. Klimas answered. New Educational DVD on Fibromyalgia - Watch it Free Online This video features well-known FM researchers and patient advocates explaining Fibromyalgia's impact and the latest science. View it online now, find the TV airing times in your area, or purchase copies.   RESEARCH ABSTRACTS More new abstracts    German Fibromyalgia patient survey lists key FM symptoms The importance of key symptoms other than pain "underlines that FM is more than a pain disorder" - what's not included is important too. Why FM should be called a "Central Sensitivity Syndrome" Dr. Yunus insists the CSS classification is scientifically appropriate and "likely to promote research, education, and proper patient management," and many terms implying involvement of a psychosocial disorder should be rejected.   LETTERS FROM OUR READERS    Comments & Suggestions · Lyrica making difference · Thanks for surgeon advice · FM & ME/CFS not same · FM education for MDs · Inherited vs. genetic Q&A Session · Treating multiple conditions? · FM or psoriatic arthropy? · Gout or FM? · Info about FibroSleep? · Dopamine depletion & FM? Questions? Comments? Please share your thoughts with us! Send us a letter   WEEKLY INSPIRATION    I claim there ain't Another Saint As great as Valentine.   - Ogden Nash Opportunities: Everywhere Too often we underestimate the power of a touch, a smile, a kind word, a listening ear, an honest compliment, or the smallest act of caring, all of which have the potential to turn a life around. - Leo Buscaglia From Beyond Casseroles - 505 Ways to Encourage a Chronically Ill Friend, a little book support groups love, by Lisa J. Copen These statements have not been evaluated by the Food and Drug Administration. These products are not intended to diagnose, treat, cure, or prevent any disease.

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