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I have had Chronic Fatigue since 1986 when it was called the yuppie disease or effects of mono. I have suffered a great deal, and the first 4-5 years I would spend 6 months in bed without being able to function. I could not will my hand to pull back the covers to get up to use the restroom…I was unable to work for the 6 months that this happened, and it usually happened between January and June of each year. Then as time passed I was able to do more and spend less time being bedridden. In 1991 I…was diagnosed with Fibromyalgia. The pain in my shoulders and neck were unbearable, and so I now lived with both Chronic Fatigue and Fibromyalgia. In 2003 I lost my husband of 21 years to prostate cancer and one year later I was hit again with another devastating illness, this time it was Polymyalgia Rheumatica, which causes pain in the long muscles of the body. I could hardly take a step because the pain was incredible, and so I lived with this for 3 years…

I have been seeing a chiropractor for 9 years who practices NAET (Nambudripad's Allergy Elimination Technique). She does not pop or snap your bones back into place but pushes on your skin in one direction and then if that does not work she goes the opposite way. She has kept me on my feet for 9 years, and I was able to care for my husband and our business. [She] kept telling me she was sure these illnesses were due to allergies, and after testing me for allergies she started clearing my allergies 1 or 2 at a time. She finally got down to my allergy for animal fats, that affected my DNA, BBF, cells, muscle, tissue, immune system and many more of what makes up my body. She treated me for all of these allergies connected with animal fats… I have been pain free since last June 2007.

I no longer have symptoms, nor any kind of pain from Chronic Fatigue, Fibromyalgia and Polymyalgia Rheumatica. I know this seems far-fetched but my family can see it in my face, my movements and in my outlook that has so dramatically changed for the better… I have told my family doctor about all of this and he says whatever I am doing to keep doing it, because he cannot believe the change in me. He says I look so much younger than I have since I started seeing him in 1995. I hope that this information helps those that may want to try this NAET technique and see if it helps them. I hope God blesses everyone with these illnesses because you are tested to the end of your ability to cope. - Rose Mary

Updated Contact Info for Our Support Group

Your contact information for the New Jersey CFS Association needs updating.
NJCFSA, PO Box 477, Florham Park, NJ 07932
NJCFSA Helpline: 888-835-3677 during business hours
E-mail Contact: njcfsa@njcfsa.org
Website: www.njcfsa.org
Thanks. – Ted Nilson former president, current website manager

Note: Ted is referring to his group’s listing in ProHealth’s searchable Support Groups database. If your group is not listed yet, you can add it easily. And if you need to change the contact info for a support group that’s already listed, just e-mail supportgroups@prohealth.com to communicate your change.

Netherlands Doing Similar Post-Exertion Study

Re: Dr. David Bell’s article “ME/CFS as a Mitochondrial Disease”
I'm very glad with this article. In my opinion it is coming very close to the core of our disease. And yes, I have been wondering for some time, why this has not been studied at more locations in the world. In our country we have problems with the government not willing to spend money on this kind of studies. They only do a little bit with CBT and GET, which is not good for most of us. In the Netherlands, the CFS Research Centre in Amsterdam, Vermeulen, et al., is now in the final stage of a study with more than one hundred CFS patients. They all do two exercise tests as described in the article. They also do many blood tests and psychological tests like Rand 36 and CIS20 in order to exclude other possible causes of fatigue. I don't know the exact numbers, but know that the outcome is about as predicted in the article. – Gerard

I Just Want to Feel Better

Re: Dr. David Bell’s article “ME/CFS as a Mitochondrial Disease”
This is interesting information, and the part about post-exertion fatigue is certainly not news to me, although my fatigue level is always high. What I 'felt' like, reading this, though, reminded me of seeing Dr. Cheney 20 years ago and listening to him explain the ATP cycle as if 'Voila!' I remember listening patiently, and then saying, “That's very interesting, but I just want to feel better, and be able to live my life again.” So bravo to all those doing research, but after 20 plus years, I just want to feel better and live my life again. It's difficult for me to get excited about more interesting information. – questus9

Omega 3 Fish Oil & Muscle Recovery Time

I started experiencing post-exertional malaise 2 or 3 years ago and had to stop exercising completely. When I researched the symptom picture, there was virtually nothing on it. I'm glad to see this topic being addressed and hope to see treatments developed in response to the data. Note to other sufferers: Since I began taking Omega 3 oil in the form of fish oil 8 months ago, my muscle recovery time has improved tremendously! Be careful to choose the highest quality of fish oil, though - all fish oil is NOT alike. – Susan17

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Note: This information has not been evaluated by the FDA. It is generic and is not meant to prevent, diagnose, treat or cure any condition, illness, or disease. It is very important that you make no change in your healthcare plan or health support regimen without researching and discussing it in collaboration with your professional healthcare team.