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National Fibromyalgia Research Association (NFRA) Funding Pilot Study on Spinal Cord Compression

In September 1997, Dr. Michael Rosner, a neurosurgeon, presented findings related to spinal cord compression and fibromyalgia at the National Fibromyalgia Research Association (NFRA) sponsored New Dimensions in Fibromyalgia Symposium in Portland, Oregon.

Dr. Rosner's findings prompted the NFRA to fund a pilot spinal cord compression surveillance study. Fibromyalgia researchers, Dr. Robert Bennett of Oregon Health Sciences University, Dr. I. Jon Russell of the University of Texas Health Sciences at San Antonio, and Dr. Dan Clauw of Georgetown University, will be conducting the research.

The study, consulted and coordinated by Dr. Rosner, consists of newly diagnosed FM patients undergoing a neurological examination and MRI to ascertain whether spinal cord compression is present. The purpose of this investigation is to determine the percentage of patients diagnosed with fibromyalgia who have this medical condition.

Based on Dr. Rosner's research, Pam Scott, FM sufferer and wife of NFRA founder, Jack Scott, under went craniectomy surgery on December 23, 1997, to alleviate problems caused by a Chiari malformation.

Since the operation, Mrs. Scott's FM symptoms have dramatically improved. Fatigue, memory and cognitive difficulties are greatly reduced and her overall widespread body pain is much relieved. Mrs. Scott's neurological symptoms disappeared and her eye problems have improved. Additionally, Mrs. Scott reports experiencing warm hands and feet for the first time in years.

As promising and hope giving as Mrs. Scott's results are, it is too soon for FM patients to visit local neurosurgeons. Once the pilot study is completed, the three research centers will have an improved understanding of this new information and will be better prepared to answer patient inquiries.

To help with the cost of this important research, the NFRA is asking for your help. Tax deductible contributions can be mailed to the National Fibromyalgia Research Association, PO Box 500, Salem, OR 97308. 100% of funds donated to NFRA are designated to fibromyalgia research or education with no administration costs deducted. To learn more about the NFRA, visit them on the web at www.nfra.net

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